Okay - finally bit the bullet and decided I just gotta DO it - get my own blog up! This may sound easy to you, but I have the IT skills of a baked potato, thus I view all these things with a certain disdain and distance...like ya would a rabid Rottweiler. The reason is simple: my mind just doesn't compute such things. That said, I think I've got it sussed? If anybody's out there and see this, lemme know. Could be yelling in a vacuum, as usual.
Posts
WE the people. That’s YOU, right? Dec 28, 2014 236 Views 11 Likes 6 Comments Share on LinkedIn Share on Facebook Share on Google Plus Share on Twitter This is for the PUBLIC . Those that don't have experience of Parkinson's. My aim is simple: education. No offence, M J Fox. We all know what a responsible, pro-active figure-head you are for Parkinson's; and we who have Parkinson's, are family, carers or otherwise involved with PD (Parkinson's) are so very grateful! I talked to probably thousands of people by now, and their understanding of PD has generally not changed in the last 15 years - the time of my husband's diagnosis. Why . Well, in part, it's our own collective fault. We're so busy putting a good 'spin' on it, basically to make other PDers feel better and keep hope alive. Lovely, noble, but it's not helping in raising awareness at the sheer devastation left in the wake of this disease. It doesn&#
WE, the Forgotten. NOT for patients Jan 4, 2015 367 Views 18 Likes 9 Comments Share on LinkedIn Share on Facebook Share on Google Plus Share on Twitter This is NOT for Parkinson's sufferers, but for YOU - the public. In fact, I truly hope PDers don't read this - they know it all and they suffer enough. This is HARD. Okay. Here we are at post 2. For those that saw the first one, I salute you!! You are my BFF! That said, I’m really struggling with this post….agonizing if fact, on all sorts of levels. How do I do justice to all Parkinson’s sufferers AND their spouses, families, carers? Because Parkinson’s is a BUSY disease – doesn't let up. Do I just talk about our own experiences? Nah…even I hate them. Downright depressing. How do I show the true colours of this disease and still maintain hope? It’s a horrifying disease – and I can’t get ‘round it. Parkinsonism is a HUGE spectrum, with each affected person having their own ‘unique’ vari
WE: our Plight, our Fight! This is the last in this series regarding Parkinson’s and Public Awareness. So I want to thank you for patience. Well done if you've stayed the course…you’re amazing! My sincere apologies for this coming so late – I do fear I've lost my audience – it has to do with the two inevitabilities of life and it isn't about taxes. There; hope that helps to get you to read! Instead of going on about the horrors of Parkinson’s (did I mention the tortuous pain of rigidities, spasms, and torticollis? These aren’t like a Charlie-horse, which is small and can be relieved quickly. They’re involuntary sustained muscle contractions which in themselves cause twisting, abnormal postures – horrible to witness and impossible to help – the body won’t be stopped! To add insult to injury, they’re often caused by trying to initiate movement), I thought I’d turn a moment to Dystonia, a Neurological Movement Disorder. Dystonia is simply awful and most often occurs
It's a funny thing - agendas, motives. Something I ask myself a lot; 'what is my agenda here?' I don't know about you, but I have a great deal of struggle even finding the real motive behind whatever I'm doing. I confess to being honestly fearful of my 'hidden agendas'. Whom do they serve? Am I 'righteous'? Or am I self-serving, egotistical...'just wanna be in pictures' as the song goes. It really bugs me - a lifetime of questioning myself. There again, I have friends that will say I 'think' too much....ha!! With that in mind, I feel the need to 'fes up to the story behind my Parkinson's posts. Why? Because sometimes you need to bounce ideas like a sonar...see what comes back. Like everybody else here on LinkedIn, I need accountability. If you're one of those people who think you're immune to cause and effect, culpability and responsibility for your actions, I'm tempted to say 'good on you'! Except i